The Addie Project

In November 2018, while on holiday in Spain, the plan was to work on my book about the Centenarian Code.  But I wasn't able to download it.  Sometimes life has a funny way of taking us in new directions.  Suddenly I had all this unplanned time on my hands, so I made a fairy house from re-purposed bottles and cardboard.  While wondering what to do with it, I received the tragic news our neighbor's daughter, Addie, had died after a life-long battle with Cystic Fibrosis. Her death sparked a thought I’d been nurturing for some time. "I want to share the knowledge I've gained about health and happiness, through my study of centenarians, as well as the wealth of scientific evidence supporting this research. What If I were to write a story for children, encompassing some of what I’ve learned? What if I include a little fairy house with my story? Yes, these little houses need to go to children with 'Big Diagnoses' to teach and empower them to signal their cells differently." 

I'd been looking for a 'give back' project I felt passionate about… one that lit me up! This does.  It makes my cells glow with happiness. 

The fairy house I made

Before I knew it, this idea took on a life all its own;  a project turning trash into treasured fairy houses. Houses which light up from the inside out, with a story about how children can signal their cells positively. And Helper-Elves!

In February 2019, the first group of fairy house makers met in my garage and started building.  In the same month the inaugural Helper-Elf tale was written. A powerful recipe for helping very sick children turn up their inner lights and kick-start their inner rainbow dynamics, was included. A story was written collaboratively by a child psychologist in South Africa, a physical therapist/illustrator from the United States and an author/psychologist research geek with a highly-tuned passion for life. And ta-da! 'The Addie Project' was born. It all unfolded in a pretty miraculous way.  

The first fairy builder crew
The fairy builder workshop

About Addie - an Angel with wings

Addie was born on April 26th 1985 and diagnosed with Cystic Fibrosis at 9-weeks old. Cystic Fibrosis is a genetic lung disease affecting mostly the lungs, but also the pancreas, liver and kidneys. Cystic Fibrosis children have volume of doctor visits, hospitalizations and many awful procedures like blood draws, IV's and much more.

Addie’s positive attitude in the face of adversity, was inspirational.  She loved purple and angel wings. She believed our mental attitudes impact our health. She didn’t just have positive quotes everywhere like,"Everyday has the possibility of a miracle," and "I live for the moments in life that take your breath away," rather she lived them.  She left to dance with the angels on November 26, 2018.

Want to help or be a part of this?

Find out our next dates and sign up to join our merry band of fairy builders.

Know a child between ages of 5-10 who has a 'big diagnoses' who would love to get a free fairy house?

Nominate a Child (USA only for ow)

Please note that all fields followed by an asterisk must be filled in.

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Each fairy package costs about $78, you can donate any amount you like here which helps us keep this project going

Questions?  Concerns?  Suggestions?  Want to donate materials? 

Recipients of The Addie Project:

Patrick is a seven-year old from Florida who has severe Eosinophilic Esophagitis and 60+ anaphylactic food allergies.  He only has about seven foods he can eat safely. 

Eosinophilic Esophagitis is a disorder whichh causes his body to see food proteins as invaders. When the food proteins hit his esophagus, his body sends out white blood cells called eosinophils to attack. They do a lot of damage in his esophagus and build up there.

As a result he has  had multiple strep throat and ear infections in the last year along with mulitple cases of Scarlett Fever. He has Lymphopenia with a white blood cell going as low as  2.1 Which means his body is not making sufficient white blood cells.  

He misses a lot of school.  

He loves all colors of the rainbow and wants to be a roller coaster designer when he grows up.

Patrick's house with his elf Mantra. Patrick's fairy builder was Jane and the fabulous Chris makes all our elves.
Patrick receiving his Addie Project package

Liberty has Juvenile Arthritis and was diagnosed eight years ago when she was 14 months old. On her journey she has had weekly chemo shots, blood draws, trips to the pediatric rheumatologist and ophthalmologist, and physical therapist.

Juvenile Arthritis is an autoimmune disease where the body  attacks itself. This autoimmune disease attacks not just her  joints. Indeed, Liberty also has Uveitis inflammation of her eyes.

Her favorite color is pink and she wants to be an art teacher when she grows up.

She hails from South Carolina

Liberty's fairy house builders were Cari, Beth and LaRae
Liberty receiving elf Sparkle

At the age of five, KW was diagnosed with Von Willebrand disease, a blood clotting disorder.   At age six she developed MRSA (Methicillin-Resistant Staphylococcus Aureus, a bacterium with antibiotic resistance) from post op complications.

This lead to a diagnoses of Ehler Danlos Syndrome. Later, after breaking her foot, she was also diagnosed with Juvenile Spondylo Arthritis. Then, at the age of eight, KW had her lymph node and a tumor on her ovary removed.  

KW loves to sing and to compose music.

She lives in Alabama.

Liberty's fairy house builders were Darshan and Cari

The Addie Project

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